Angel's Daily Dose About Me,Life Ulcerative Colitis (UC)

Ulcerative Colitis (UC)

I wanted to talk about Ulcerative Colitis a little because I know there are a lot of people who have. I am one of those people too. I have good days with it and bad. There are different types from mild to severe. When you have a bad day or week it takes you out . I know that the type of treatment I get is infusions and they help. I know I still have a day or two to feel back to myself again. But if you have not heard of it or know someone that deals with it, let me tell you some of the symptoms we have to deal with most of the time.

Symptoms of Colitis could be any of the following: Pain in the abdomen, joints or rectum, along with bloating, blood in your stools, diarrhea. There are more things we deal with anemia, fatigue, fever or loss of appetite, cramping , weight loss. It can drain you for a day or longer. The treatments do help but still have those bad days.

I have UC for over 18 years and I never have the same day. I know others that deal with it and are doing great. I wanted to let you know this because sometimes this is something that keeps me from making my post each week.

Thanks for listening to me and I hope it makes it easier to understand that you don’t know what someone is going through unless you ask.

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LonelinessLoneliness

I am writing this on the way I feel.  Over the past few weeks I know that I have not wrote anything and it because of loneliness. It happens more often the people think. I know that I get this way and I shut down and shut others out. It hard some days. I due get thru it with a few friends help and the ones I can count on my dogs.  It good to have a support system in place so that when you get this way you know where you can go to. I never get to the place where taking my life is ever an option. I know I have more to do in life and it not my turn.

I just wanted to let people out that know why I have not wrote, being honest with others help more then most people think. When you know that you have issues and you can let others know too that is the first step. I know that I don’t always let people in and help, but I am trying. Plus I think of my mom and wonder what she say to me at times about what going on. She always try and help or even just listen which we all need that.

so please is you get this way remember there is help out there for us and make sure you have support system they do help. I know that over the last year I have done things differently because I know that I have a lot of things I want to do and try. I am not willing to give up that just yet.

Just cause we are all different we all still need to think about others and see what we can do to help. Just think we all have problems but we don’t always show them.

Just think of what Ellen would say Be kind to one another.

LimitsLimits

This week I like to talk about our limits and when they get pushed too far. I know that I have had this happen to me these past couple of weeks. I was not sure how to handle it. So I had to look for something that would help me calm down.

Remember what makes you feel at peace and happiness. I know that I had to think and push myself into what I need to do. It is not always easy but it works in the end. Baking and reading help me. When I am baking I listen to pod cast and that also helps direct my mind to something else and calms the rest of me.

At night I go to bed early to read and that directs me to what I am reading and calms me to be able to sleep which I need. I know what I need and I just have to figure out how to make it happen for me.

I know this post has taken me a little longer. It’s hard to type one handed that is for sure. When you have a lot of things to do, but when you have to do it slow and one handed. I just know that my limits have been tested , but this is a time when I get to know myself. I know that changes are happening and I can’t stop it.

Thank you for following my journey and getting to know me.

PSCPSC

There are a lot of people that don’t know what this is. It is primary sclerosing cholangitis . Which is a disease of the liver. I have dealt with it for over 10 years now. Everyone deals with it differently I know that for sure. There is no cure for it, from what I have been told over the years. I know that my specialist watches what they call a MELD score. Every doctor deals with patience differently with this as well. I know when I hit a number she is sending me to the transplant unit to get all my tests done to get on a list.

I am letting you know that with my ulcerative colitis and this some days are hard to get thru. Plus I have to be careful not to be around sick people cause I can get sick easily and it is hard for me to get better.

I have dealt with both of these for over 10 years and when another year goes by I always have questions about what I can do to be more healthy and not in pain. I am going to be changing medication again. This is my 5th one and I wish my body would stop kicking them out and not work.

These last to weeks that is what I have been dealing with. I got sick over Christmas and I been trying to get better ever since then.

So please understand I am going to continue this and share what is going on but each week is different.