There are a lot of people that don’t know what this is. It is primary sclerosing cholangitis . Which is a disease of the liver. I have dealt with it for over 10 years now. Everyone deals with it differently I know that for sure. There is no cure for it, from what I have been told over the years. I know that my specialist watches what they call a MELD score. Every doctor deals with patience differently with this as well. I know when I hit a number she is sending me to the transplant unit to get all my tests done to get on a list.

I am letting you know that with my ulcerative colitis and this some days are hard to get thru. Plus I have to be careful not to be around sick people cause I can get sick easily and it is hard for me to get better.

I have dealt with both of these for over 10 years and when another year goes by I always have questions about what I can do to be more healthy and not in pain. I am going to be changing medication again. This is my 5th one and I wish my body would stop kicking them out and not work.

These last to weeks that is what I have been dealing with. I got sick over Christmas and I been trying to get better ever since then.

So please understand I am going to continue this and share what is going on but each week is different.

Related Post

FriendshipFriendship

This week topic is about friendship. Everyone has a different definition of friendship.

I know that for me it is someone that is always there for you no matter what. You can tell them anything that is wrong and they won’t judge you. I know when everyone has a hard time they need someone to talk to or go to help. Sometimes friends are right in your own home and other times they are not.

I know that I have a couple of friends that I could not go thru life without. I am there for them as much as they are there for me and that is what I think a good friend is.

I know this one is short this week and it was because I have been sick and trying to battle with getting better. It is hard when you are down, but this is where those friends that are there for you to check to make sure you are doing better each day.

Take a minute and see who your true friends are. You need more positive people in your life.

Thank you for taking the time to read this, please comments

TimeTime

I know we all wish we had more time each day to get everything done. I know I am one of those people. I try to make a plan to use it all the time I have each day. I have a hard time trying to get everything done. I know others except me to do things all by myself but I know I can’t get it all done. When I don’t get things I feel bad. I feel like I failed others that count on me.

I look around at what I have and I feel blessed. I know that I should do more. I just know that my health is what I should work on. I know that I have been trying to, but it has become hard these past few weeks. I am learning to live different from what I can eat.

Life is hard when others don’t know what I go thru everyday. I keep a lot more to myself than let others know. I have a few great friends that listen to me and don’t judge me when I can’t handle life. I decided to take a step back to others that I have a hard time talking to. I know the ones that are there for me and that is all I need in my life.

I even step back from talking to some family members, because I have a hard time talking to them. I’m trying to figure out what one family wants me for. I know that I need to talk to this family member about what is in my mind.

This is a hard post for me today. Others would read this and wonder if they are the one I am talking about. I want to thank you for listening.

my journey will continue later this week. hope you keep reading.

How do you KnowHow do you Know

I want to talk about life and if you are making the right choices. Everyone has a purpose in life and we all need to figure out what it is. You see others make choices about their life and ask questions if they are happy or not. You could read a book or listen to a podcast and ask yourself what my purpose in life is. I think about this a lot. That is when the question comes to mind how do you know you made the right choice.

One day we all will figure it out. You just have to believe in yourself and know that you can reach it. Some of us just do what we need to each day to get by. I know that one day I will be able to answer this question just like others that have figured out what their purpose in life is.

We all have dreams that we like to do, but we never know how to reach them. I know that I have made small goals that will one day lead to the big one at the end. I don’t know how much time is going to take me, but I know that I will reach it one day. Don’t be afraid to try different things that you always want to. You will find your purpose in life.

I want to give back to others, which helps as many people as I can. I know that my life has changed over the years, but I want to do what I can. Life is sometimes hard, but I know that I will work hard and do what I can. My friends keep me going with the kindness and caring hearts they have.

Thank you again for another week.