There are a lot of people that don’t know what this is. It is primary sclerosing cholangitis . Which is a disease of the liver. I have dealt with it for over 10 years now. Everyone deals with it differently I know that for sure. There is no cure for it, from what I have been told over the years. I know that my specialist watches what they call a MELD score. Every doctor deals with patience differently with this as well. I know when I hit a number she is sending me to the transplant unit to get all my tests done to get on a list.

I am letting you know that with my ulcerative colitis and this some days are hard to get thru. Plus I have to be careful not to be around sick people cause I can get sick easily and it is hard for me to get better.

I have dealt with both of these for over 10 years and when another year goes by I always have questions about what I can do to be more healthy and not in pain. I am going to be changing medication again. This is my 5th one and I wish my body would stop kicking them out and not work.

These last to weeks that is what I have been dealing with. I got sick over Christmas and I been trying to get better ever since then.

So please understand I am going to continue this and share what is going on but each week is different.

Related Post

Ulcerative Colitis (UC)Ulcerative Colitis (UC)

I wanted to talk about Ulcerative Colitis a little because I know there are a lot of people who have. I am one of those people too. I have good days with it and bad. There are different types from mild to severe. When you have a bad day or week it takes you out . I know that the type of treatment I get is infusions and they help. I know I still have a day or two to feel back to myself again. But if you have not heard of it or know someone that deals with it, let me tell you some of the symptoms we have to deal with most of the time.

Symptoms of Colitis could be any of the following: Pain in the abdomen, joints or rectum, along with bloating, blood in your stools, diarrhea. There are more things we deal with anemia, fatigue, fever or loss of appetite, cramping , weight loss. It can drain you for a day or longer. The treatments do help but still have those bad days.

I have UC for over 18 years and I never have the same day. I know others that deal with it and are doing great. I wanted to let you know this because sometimes this is something that keeps me from making my post each week.

Thanks for listening to me and I hope it makes it easier to understand that you don’t know what someone is going through unless you ask.

Making SpaceMaking Space

This last weeks I have a lot going on and I need some encouragement. So when I need this I listen to this podcast. Hoda talks to many different people and it makes you think about your own life. It helps me look at my own life and see what I need to change or what I enjoy in life.

Sometimes I need just a day to process everything I was told. So when this happens I have to do something that helps me redirect my mind and take me back. This week I have been baking for a huge craft sale this coming weekend. It has helped me just to calm me.

I know that this life is not going to break me. I am going to find the purpose that I need to do. I am going to figure it out one day.

This is all for the day, I need to figure out something this month. I will be posting more soon.

LoveLove

A new month and it is all about love or it is supposed to be. I know that my life has not always been easy. I have been married for 30 years which is unheard of. February is a wonderful month because my little baby girl was born, she is not so little anymore. I am so proud of her and what she has done in her life so far.

This month is going to be a busy one for her and her business. I hope people go check it out. she does wonderful work.

I am not sure what is going on with me but my depression has been on overdrive. Not sure what will help make things better with it. I don’t like going to the doctor and taking something for it. I think that it is better when you can find ways to overcome it.

This is my fifth week and I have enjoyed sharing things out there and hoping one day I can help someone else. I donate stuff and help where I can and that makes me happy. I wish there was a way I could make more money and help more.

Working toward something is what my goal is. Still trying to find my purpose in life yet, but I know that it will come with time.

Thanks to all