There are a lot of people that don’t know what this is. It is primary sclerosing cholangitis . Which is a disease of the liver. I have dealt with it for over 10 years now. Everyone deals with it differently I know that for sure. There is no cure for it, from what I have been told over the years. I know that my specialist watches what they call a MELD score. Every doctor deals with patience differently with this as well. I know when I hit a number she is sending me to the transplant unit to get all my tests done to get on a list.

I am letting you know that with my ulcerative colitis and this some days are hard to get thru. Plus I have to be careful not to be around sick people cause I can get sick easily and it is hard for me to get better.

I have dealt with both of these for over 10 years and when another year goes by I always have questions about what I can do to be more healthy and not in pain. I am going to be changing medication again. This is my 5th one and I wish my body would stop kicking them out and not work.

These last to weeks that is what I have been dealing with. I got sick over Christmas and I been trying to get better ever since then.

So please understand I am going to continue this and share what is going on but each week is different.

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TimeTime

I know we all wish we had more time each day to get everything done. I know I am one of those people. I try to make a plan to use it all the time I have each day. I have a hard time trying to get everything done. I know others except me to do things all by myself but I know I can’t get it all done. When I don’t get things I feel bad. I feel like I failed others that count on me.

I look around at what I have and I feel blessed. I know that I should do more. I just know that my health is what I should work on. I know that I have been trying to, but it has become hard these past few weeks. I am learning to live different from what I can eat.

Life is hard when others don’t know what I go thru everyday. I keep a lot more to myself than let others know. I have a few great friends that listen to me and don’t judge me when I can’t handle life. I decided to take a step back to others that I have a hard time talking to. I know the ones that are there for me and that is all I need in my life.

I even step back from talking to some family members, because I have a hard time talking to them. I’m trying to figure out what one family wants me for. I know that I need to talk to this family member about what is in my mind.

This is a hard post for me today. Others would read this and wonder if they are the one I am talking about. I want to thank you for listening.

my journey will continue later this week. hope you keep reading.

Ulcerative Colitis (UC)Ulcerative Colitis (UC)

I wanted to talk about Ulcerative Colitis a little because I know there are a lot of people who have. I am one of those people too. I have good days with it and bad. There are different types from mild to severe. When you have a bad day or week it takes you out . I know that the type of treatment I get is infusions and they help. I know I still have a day or two to feel back to myself again. But if you have not heard of it or know someone that deals with it, let me tell you some of the symptoms we have to deal with most of the time.

Symptoms of Colitis could be any of the following: Pain in the abdomen, joints or rectum, along with bloating, blood in your stools, diarrhea. There are more things we deal with anemia, fatigue, fever or loss of appetite, cramping , weight loss. It can drain you for a day or longer. The treatments do help but still have those bad days.

I have UC for over 18 years and I never have the same day. I know others that deal with it and are doing great. I wanted to let you know this because sometimes this is something that keeps me from making my post each week.

Thanks for listening to me and I hope it makes it easier to understand that you don’t know what someone is going through unless you ask.

What to be thankful for?What to be thankful for?

It is the week of thanksgiving and you start to think about what to be thankful for. I know life doesn’t always go your way, but there is always something to be thankful for. I know I have my family, friends and animals. My health I wish could be better and one day it will be.

This is also the time of year we like to give back to others that don’t have as much as we do. I know one day I will be able to give back more than I do now. Each year we find a family or two that needs a little help and give back or pay it forward. I know others would do it if they could but not everyone thinks the same as we do.

This time of year is a little hard for me to because I lost my mom around the holidays and each year that passes I miss her more and more. I know she would love to back and put a tree up and have family around. This is why I give back or pay it forward because I know my mom loved me the best she could. It was not always the fair way but she loved her grand kids and wanted to make sure they got something they wanted.

Just remember that there are animals that need us too. It is getting cold out and they don’t have somewhere warm to stay. Give back to all is the greatest gift of all and it is a way to say that you are thankful for what you have.

So thank you for letting me do this all year long and I will continue as long as I can.